Gastroschisis Defect

"The day after our anatomy scan, I got woken up by a phone call at 9am from the radiologist informing me that our baby would be born with Gastroschisis, he had a hole in his stomach and all of his organs were forming on the outside but that they couldn’t tell me anything else and that my OB would be in contact.
Panicking, I called my husband who was over an hour away for work, sobbing and he was home within half an hour. We had family rushing to our house and just holding me because I was terrified for my child and had no idea how I could be strong. We had monitoring weekly to track the dilation of his intestines. From 20 weeks to 34 weeks, I lived in the hospital, I was admitted for everything.
At 35 weeks, I went in for a non-stress test and they found that my blood pressure was unsafe so I got rushed to the hospital I was set to deliver at, with the impression that I was about to have an emergency c-section. I got hooked up to all of the monitors, and all of a sudden - everything went back to normal. They decided that since I had a far drive, they would keep me since our initial plan was to induce at 36 weeks due to risk of stillbirth with the defect.
5 days into being admitted, I woke up and knew that something was off so they rushed the specialist in and went to do a scan to check on the baby. He had a heartbeat, but was not moving. It was then decided that he needed to come out. He was born that night and immediately transported to the Children’s hospital for emergency surgery. His case of Gastroschisis ended up being one of the most severe cases he had ever seen.
Our baby is a fighter, after 7 surgeries, him getting super sick from stress, and a few setbacks; he came home after 138 days in the NICU. At just over one year old, he has beat all of the odds and continues to show us how tough he is! 💚" NICU Mama, Hannah